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Medicines News from Alzheimer's Society
The National Institute for Health and Care Excellence (NICE) has this week confirmed that the Alzheimer’s treatments, lecanemab and donanemab, will not be made available on the NHS.
While the UK’s medicines regulator (MHRA) approved the drugs after evidence showed they could slow the progression of early Alzheimer’s, NICE has concluded that neither treatment currently meets its cost-effectiveness threshold for use in the NHS.
We know that this is a deeply disappointing moment for many people living with dementia. It’s also a wake-up call.
The science is flying, but the system is failing.
As Professor Fiona Carragher, Alzheimer’s Society’s Chief Policy and Research Officer, said:
“The fact is, even if donanemab and lecanemab were made available on the NHS tomorrow, too many patients wouldn’t be able to access them because the health system isn’t ready to deliver them.”
The next generation of treatments is already on the horizon with more than 130 Alzheimer’s drugs in clinical trials. But unless we act now, the NHS won’t be ready.
We're calling for:
The National Institute for Health and Care Excellence (NICE) has this week confirmed that the Alzheimer’s treatments, lecanemab and donanemab, will not be made available on the NHS.
While the UK’s medicines regulator (MHRA) approved the drugs after evidence showed they could slow the progression of early Alzheimer’s, NICE has concluded that neither treatment currently meets its cost-effectiveness threshold for use in the NHS.
We know that this is a deeply disappointing moment for many people living with dementia. It’s also a wake-up call.
The science is flying, but the system is failing.
As Professor Fiona Carragher, Alzheimer’s Society’s Chief Policy and Research Officer, said:
“The fact is, even if donanemab and lecanemab were made available on the NHS tomorrow, too many patients wouldn’t be able to access them because the health system isn’t ready to deliver them.”
The next generation of treatments is already on the horizon with more than 130 Alzheimer’s drugs in clinical trials. But unless we act now, the NHS won’t be ready.
We're calling for:
- Improvements in diagnosis: One in three people with dementia in the UK don’t have a diagnosis. Early and accurate diagnosis will be essential for access to future treatments.
- Learning from this process: NICE’s first disease-modifying dementia drug appraisals may offer valuable insights for future assessments.
- Capturing real-world data: As these treatments are used privately in the UK and abroad, outcomes data will help build understanding and must be captured and shared.
Important Message from Liverpool City Council
Consultation on Non-Residential Adult Social Care Charging Policy
Consultation Period: 23 June – 17 August 2025
Liverpool City Council is reviewing how people are charged for non-residential adult social care services. This relates to charging for care and support in the community that is arranged by the council but does not relate to charging for people living in care homes. The proposed changes may affect how much people contribute toward their care.
We want to hear from as many people as possible before any decisions are made. Your feedback will help shape the final policy. You can share your views by:
Consultation Events
All events require booking in advance.
For people preparing for adulthood:
To request a paper copy or an alternative format of the survey, email:
[email protected]
If you have additional support needs for attending an event, please let us know in advance.
After the consultation closes, responses will be reviewed by a dedicated team. A summary report will be published in October 2025 at liverpool.gov.uk/consultation. The Council’s Cabinet will consider the feedback and decide on any changes. If approved, the new policy will begin implementation in November 2025.
Consultation on Non-Residential Adult Social Care Charging Policy
Consultation Period: 23 June – 17 August 2025
Liverpool City Council is reviewing how people are charged for non-residential adult social care services. This relates to charging for care and support in the community that is arranged by the council but does not relate to charging for people living in care homes. The proposed changes may affect how much people contribute toward their care.
We want to hear from as many people as possible before any decisions are made. Your feedback will help shape the final policy. You can share your views by:
- Completing the online survey at liverpool.gov.uk/consultation
- Requesting a paper copy of the survey
- Attending one of our consultation events (booking required)
Consultation Events
All events require booking in advance.
For people preparing for adulthood:
- Mon 7 July, 6:30–8:00pm
- Wed 9 July, 1:00–3:00pm
- Mon 14 July, 1:00–3:00pm
- Wed 9 July, 10:00am–12:00pm
- Mon 14 July, 1:00–3:00pm
- Wed 16 July, 6:30–8:00pm
- Fri 18 July, 1:00–2:30pm
- Tue 29 July, 10:00am–12:00pm
- Fri 18 July, 10:00am–12:00pm
- Mon 21 July, 1:00–3:00pm
- Fri 25 July, 10:00am–12:00pm
- Wed 30 July, 10:00am–12:00pm
To request a paper copy or an alternative format of the survey, email:
[email protected]
If you have additional support needs for attending an event, please let us know in advance.
After the consultation closes, responses will be reviewed by a dedicated team. A summary report will be published in October 2025 at liverpool.gov.uk/consultation. The Council’s Cabinet will consider the feedback and decide on any changes. If approved, the new policy will begin implementation in November 2025.
At the May meeting of LDAA members in the Mansion House at Calderstones Park there was a record attendance of nearly 40 representatives.
Presentations were delivered by our hosts The Reader organisation regarding their work and by Sam Clements of Cheshire and Merseyside Integrated Care Board, Liverpool Place, outlining the new NHS Dementia 100 Pathway Toolkit, a structured checklist to evaluate dementia strategies and operations.
The presentations can be accessed by clicking on the links below.
| dementia_100_presentation_250519.pptx |
| reader.pdf |
Together in Dementia Everyday (tide) and Alzheimer’s Society are working together to provide peer support groups in Liverpool and Sefton that are especially for younger people with dementia and their carers, offering mutual support, information sharing, a bit of fun and delicious biscuits!
12 July, 16 August, 13 September, 11.00-12.30 at Liverpool Central Library, William Brown St, L3 8EW.
Email [email protected] if interested.
Many LDAA members were amongst the 117 registered attendees at the Liverpool City Region Dementia Symposium on 21st May. The presentations which were delivered - by Alzheimer's Society, tide and the 6 LCR local authorities - have been made available online for download by following this link, also photos and a video feature.
Parliament held a debate on dementia care on 3rd June, led by Caroline Voaden MP. You can watch it here but it is 8 hours long. The transcript (a better option) can be read here.
No MPs from Liverpool City Region took part; Oldham MP Debbie Abrahams (Chair of the Dementia APPG) contributed and towards the very end the Minister of State for Care Stephen Kinnock spoke. The debate covered a lot of familiar topics and it was interesting to see ICBs mentioned several times, in particular their share of NHS cuts.
No MPs from Liverpool City Region took part; Oldham MP Debbie Abrahams (Chair of the Dementia APPG) contributed and towards the very end the Minister of State for Care Stephen Kinnock spoke. The debate covered a lot of familiar topics and it was interesting to see ICBs mentioned several times, in particular their share of NHS cuts.
An invitation from Liverpool Dementia and Ageing Research Forum -
Launch of the Dementia Explorer Game!
Join us for the launch event of the first children board game about dementia!
5th September 12.00 - 2.00 Waterhouse Building Block J, Brownlow Street Liverpool L69 3GF - Eventbrite link here
Designed with primary school children, people with dementia and unpaid carers, we are excited to launch our second board game on dementia during World Alzheimer Month!
Who can attend?
Primary school children (aged 7-11), teachers, parents, people with dementia, carers, anyone with an interest in dementia
Will there be refreshments?
Yes! There will be sandwiches and drinks.
Launch of the Dementia Explorer Game!
Join us for the launch event of the first children board game about dementia!
5th September 12.00 - 2.00 Waterhouse Building Block J, Brownlow Street Liverpool L69 3GF - Eventbrite link here
Designed with primary school children, people with dementia and unpaid carers, we are excited to launch our second board game on dementia during World Alzheimer Month!
Who can attend?
Primary school children (aged 7-11), teachers, parents, people with dementia, carers, anyone with an interest in dementia
Will there be refreshments?
Yes! There will be sandwiches and drinks.